Down Syndrome Research Resources

Government Resources:

Clinical trials on Down syndrome
A service of the NIH which lists active clinical trials.

DS-Connect
The new health registry which connects individuals with Down syndrome to medical providers and researchers who could help them.

Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
A division of the National Institutes of Health (NIH) which has funded research about Down syndrome.

Research Organizations:

Down Syndrome Education
Research explores how children with Down syndrome develop and learn and identifies more effective teaching approaches and therapies.

Down Syndrome Research Foundation
Investigates best practices and initiates and participates in research studies to gain a better understanding of the learning styles of individuals with Down syndrome.

Linda Crnic Institute for Down Syndrome
Supports basic and clinical research which can improve the lives of people with Down syndrome.

LuMind Foundation
Supports research to improve cognitive functioning in people with Down syndrome.

University Research Centers:

Association of University Centers on Disabilities
Includes  a directory of Intellectual and Developmental Disabilities Research Centers as well as a directory of University Centers for Excellence in Developmental Disabilities (such as the Institute for Disability and Human Development at the University of Illinois, Chicago).