The NADS group, Down Syndrome and More, serves families whose child with Down syndrome has an additional diagnosis, such as Autism or ADHD. The More Than Down Syndrome Retreat is offered twice a year. During the Retreat, parents learn from experts and share with each other while their child with a dual diagnosis engages in fun activities and is cared for by trained respite workers. For more information about this program, please contact NADS.
Many of the resources the members of this group have gathered over the years are collected below.
For more information about Down syndrome and Autism, including signs and symptoms, obtaining an evaluation for autism, and related behaviors, see the dual-diagnosis section on the website of the National Down Syndrome Society.
Since 1998, NADS has provided a special service for families whose child with Down syndrome has an additional diagnosis, such as autism or ADHD. This NADS group is called Down Syndrome and More. It is often difficult for families of children with a dual diagnosis to network with local support groups. Families dealing with a dual diagnosis often feel like they don’t fit in at the local Down syndrome support group. At the same time they don’t fit in at the local autism support group either. The daily struggles are unique, leaving many families feeling isolated.
The NADS group, Down Syndrome and More, is a place for families to discuss unique challenges and added stress, share resources, teaching strategies, and medical information, focusing on possible solutions along with humorous stories in a safe, non-judgmental environment. NADS offers a More Than Down Syndrome Retreat twice a year. At the Retreat, children are cared for by trained respite workers. NADS ensures a minimum 1:1 ratio at minimum for maximum safety. Children spend time engaged in fun activities such as swimming, play and music therapy. We offer this retreat for families who are under a great deal of stress to share and address issues of concern to them. During the retreat, experienced professionals tackle those issues and give practical strategies for coping with the communication and behavioral challenges of their child.
The Retreat is held twice a year, accommodating a small group of NADS families. If you are a NADS member and your child with Down syndrome has been diagnosed with autism or ADHD, please contact NADS for more information about Down Syndrome and More.
For more information about Down Syndrome and autism, please see our Down Syndrome and More resources page.
“The More than Down Syndrome Retreat is fuel for my year. We share our joys, frustrations and uncertainties together. I am reminded that we are not alone in our struggles with raising Kenny and a dual diagnosis. We have learned so much with the support and education at the retreats since Kenny’s diagnosis of autism over 11 years ago.”—Shelly C.
CABS provides clinic, school, and in-home ABA and speech therapy services to families located in Northwest Illinois
Illinois Crisis Prevention Network, work with individuals with severe behaviors and are struggling to maintain in their current home or placement.
Little Friends Center for Autism located in Naperville (630) 305-4196
Easter Seals offers programs, training and equipment for families
Support in Midwest states (847) 564-0822
Reach ABA (773) 609-4076
Association for Individual Development (630) 966-4000
Private school and autism programs
Advocacy and Legal Support
Robert Farley, Special Needs Attorney/Guardianship (630) 369-0103
Rubin Law, Special Needs attorney has a son with autism (847) 279-7999
Special Needs Trusts (Joe Monohan)/ School Advocacy (Matt Cohen)
Jennifer Wood in Plainfield (815) 704-3500
Family Benefit Solutions, Sheri Schneider
Law Offices of Rose & Malone in Sycamore (815) 756-2000
The Estate Planning Group in Wheaton (630) 871-8778
Free Estate Planning Guide
Estate planning McManus Consulting (847) 256-0456 | firstname.lastname@example.org
Developmental Disability Consultant
Catherine Whitcher Special Needs Advocate (815) 302-1273
Spain Spain and Varnet Attorney, wills and trusts (312) 220-9112
Advocacy for parents
Advocacy site for parents and teachers
Adult Down Syndrome Clinic in Park Ridge Dr. Brian Chicoine (847) 318-2303
Adolescent and Adult Psychiatry (630) 541-8930
Dr. Lance David Reinke, Clinical Neuropsychologist, Psychologist in Winfield
Dr. Thomas Owley, Child/Adolescent Psychiatrist and Dr. Berry Kravitz, Neurologist
Dr. Jaurdo, Special needs dentistry 1-800-543-7362
Dr. Nina Cordell in Schaumburg, 847-882-3360
Dr. Tom Donohue, Pediatric Dentistry (630) 961-0996 Dr. Henry (Dentist) and Dr. Susan Lyons (ENT) no contact information available
Dr. David Jones (Dentist-Naperville) (630) 527-8686
Dr. Lance Skinskys (Dentist- Plainfield) (815) 577-0700
Dr. Stephen Heaney, (Dentist-Orland Park) (708) 361- 9199
- Dr. Stephen Henry (Dentist-Orland Park) (708) 403-3393
- Dr. Susan Lyon (ENT-Palos Heights) (708) 361-9199
- Dr. Peter Smith Developmental Pediatrics U of C (773) 702-0660
- Children’s at Westchester Medical and Surgical Team (312) 227-7900
Occupational, Speech and Physical Therapists and Clinics
Sovereign Pediatric Therapy-Naperville (630) 585-7337
Katie Bug Therapy-Naperville (630) 904-0700 Rainbow Pediatric Therapy Place-Aurora (630) 898-2200
Lenise McGregor, OT-Naperville (630) 305-4196
Recreation, Leisure, Retail
National Park Services free camping tent and tools for first time campers
National Abilities Camp in Park City, Utah
Fox Valley Special Recreation Association-day camps, swim lessons, bike camp
Western Dupage Special Recreation Association-camps, lessons, social groups
Special needs bikes and bike modifications in St. Charles
Parent/child camp in Michigan
in Plainfield equine therapy
Equine therapy in Sandwich
Equine therapy in Burr Ridge
Down syndrome Awareness Centers
Loose the Training Wheels bike camp
Scuba and Snorkeling for persons with disabilities
Special needs micro-enterprise
Jewelry micro-enterprise run by a young adult with Down syndrome
Specialty clothing and jeans that fit
Travel opportunities for special needs Support Groups and Online Sites
Blog/resources-Down syndrome with a Slice of Autism
A comprehensive list of resources in Chicagoland area***Great site!
Extensive information and help with links your state/local agencies
- www.behavioradvisor.com/FBA Behavior support site
Autism Discussion Page-Bill Nason, Autism Specialist
Illinois Parents of Adults With Developmental Disabilities
Network site for parents
National Down Syndrome Congress
National Down Syndrome Society
Great Resources for special needs families.
Information on TEEACH materials
IEP Goal helpful ideas
Enjoyable site highlighting Down syndrome
Toileting and Personal Self-Care
Swim diapers for child and adults
Diapers, swim diapers and related products
Bed wetting alarms
Tech Support, Evaluations, Programs and Equipment
Assistive tech evaluations and training 630-620-4433
Assistive tech evaluations and training
- www.ahs.uic.edu/cl/atu/referrals/ Assistive tech evaluations (free)
Free 30 day trial app available ($29 monthly thereafter)
Communication application for iPod/iPad technology
Augmentative and Alternative Communication
Mike Cole, Augmenative Communication Specialist/Speech-Language Pathologist. In-home services, (630) 296-7377
Safety and Wandering Prevention
Autism Wandering Awareness Alerts Response Education has a comprehensive list of tips, materials and tools.
Medical ID bracelets
Tracking system located in various cities
GPS Tracking bracelets connected to participating police departments
GPS tracking device for wrist or ankles
Illinois Premise Alert 430ILCS132(PA-96-0788) now required in all Illinois police departments. Contact Dwayne English, Joliet PD for more information at 815-341-9025