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The NADS group, Down Syndrome and More, serves families whose child with Down syndrome has an additional diagnosis, such as Autism or ADHD. The More Than Down Syndrome Retreat is offered twice a year.  During the Retreat, parents learn from experts and share with each other while their child with a dual diagnosis engages in fun activities and is cared for by trained respite workers.  For more information about this program, please contact NADS.

Many of the resources the members of this group have gathered over the years are collected below.

For more information about Down syndrome and Autism, including signs and symptoms, obtaining an evaluation for autism, and related behaviors, see the dual-diagnosis section on the website of the National Down Syndrome Society.

Resources

Dual Diagnosis

Since 1998, NADS has provided a special service for families whose child with Down syndrome has an additional diagnosis, such as autism or ADHD.  This NADS group is called Down Syndrome and More. It is often difficult for families of children with a dual diagnosis to network with local support groups. Families dealing with a dual diagnosis often feel like they don’t fit in at the local Down syndrome support group. At the same time they don’t fit in at the local autism support group either. The daily struggles are unique, leaving many families feeling isolated.

The NADS group, Down Syndrome and More, is a place for families to discuss unique challenges and added stress, share resources, teaching strategies, and medical information, focusing on possible solutions along with humorous stories in a safe, non-judgmental environment. NADS offers a More Than Down Syndrome Retreat twice a year. At the Retreat, children are cared for by trained respite workers.  NADS ensures a minimum 1:1 ratio at minimum for maximum safety. Children spend time engaged in fun activities such as swimming, play and music therapy.  We offer this retreat for families who are under a great deal of stress to share and address issues of concern to them. During the retreat, experienced professionals tackle those issues and give practical strategies for coping with the communication and behavioral challenges of their child.

retreat_2The Retreat is held twice a year, accommodating a small group of NADS families. If you are a NADS member and your child with Down syndrome has been diagnosed with autism or ADHD, please contact NADS for more information about Down Syndrome and More.  

For more information about Down Syndrome and autism, please see our Down Syndrome and Autism resources page.

“The More than Down Syndrome Retreat is fuel for my year. We share our joys, frustrations and uncertainties together. I am reminded that we are not alone in our struggles with raising Kenny and a dual diagnosis. We have learned so much with the support and education at the retreats since Kenny’s diagnosis of autism over 11 years ago.”Shelly C.

Autism Training/Support/ABA

  • www.cabsautism.com
    CABS provides clinic, school, and in-home ABA and speech therapy services to families located in Northwest Illinois
  • www.icpn.org
    Illinois Crisis Prevention Network, work with individuals with severe behaviors and are struggling to maintain in their current home or placement.
  • www.littlefriendsinc.org
    Little Friends Center for Autism located in Naperville (630) 305-4196
  • www.easterseals.com
    Easter Seals offers programs, training and equipment for families
  • www.AutismHomeSupport.com
    Support in Midwest states (847) 564-0822
  • www.reachaba.com
    Reach ABA (773) 609-4076
  • www.the-association.org
    Association for Individual Development (630) 966-4000
  • www.theautismprogram.org
    Autism resources
  • www.turningpointeschool.org
    Private school and autism programs

Advocacy and Legal Support

  • www.farley1.com
    Robert Farley, Special Needs Attorney/Guardianship (630) 369-0103
  • www.rubinlaw.com
    Rubin Law, Special Needs attorney has a son with autism (847) 279-7999
  • www.monohanlawllc.com
    Special Needs Trusts (Joe Monohan)/ School Advocacy (Matt Cohen)
  • www.woodfamilylaw.com
    Jennifer Wood in Plainfield (815) 704-3500
  • benefithelp@aol.com
    Family Benefit Solutions, Sheri Schneider
  • croselaw@gmail.com
    Law Offices of Rose & Malone in Sycamore (815) 756-2000
  • www.TEPLG.com
    The Estate Planning Group in Wheaton (630) 871-8778
  • www.SpecialNeedsFreedomGuide.com
    Free Estate Planning Guide
  • www.LifesPlanInc.org
    Estate planning McManus Consulting (847) 256-0456 | mcmanus06@comcast.net
    Developmental Disability Consultant
  • www.catherinewhitcher.com
    Catherine Whitcher Special Needs Advocate (815) 302-1273
  • www.ssvlegal.com
    Spain Spain and Varnet Attorney, wills and trusts (312) 220-9112
  • www.specialneedsadvocacy.wordpress.com
    Advocacy for parents
  • www.specialedadvocacy.org
    Advocacy site for parents and teachers

Doctors/Specialists/Dentists

  • www.advocatehealth.com
    Adult Down Syndrome Clinic in Park Ridge Dr. Brian Chicoine (847) 318-2303
  • www.wellspringforchange.com
    Adolescent and Adult Psychiatry (630) 541-8930
  • www.alltherapist.com/dr-lance-reinke.html
    Dr. Lance David Reinke, Clinical Neuropsychologist, Psychologist in Winfield
  • http://doctors.rush.edu/directory/profile.asp
    Dr. Thomas Owley, Child/Adolescent Psychiatrist and Dr. Berry Kravitz, Neurologist
  • www.luriechildrens.org/dentistry.org
    Dr. Jaurdo, Special needs dentistry 1-800-543-7362
  • www.abcdds.com
    Dr. Nina Cordell in Schaumburg, 847-882-3360
  • www.justforkidsnaperville.com
    Dr. Tom Donohue, Pediatric Dentistry (630) 961-0996 Dr. Henry (Dentist) and Dr. Susan Lyons (ENT) no contact information available
  • https://www.smallsmiles.org
    Dr. David Jones (Dentist-Naperville) (630) 527-8686
  • www.lksdds.com
    Dr. Lance Skinskys (Dentist- Plainfield) (815) 577-0700
  • www.drheaneypediatricdentistry.com
    Dr. Stephen Heaney, (Dentist-Orland Park) (708) 361- 9199
  • Dr. Stephen Henry (Dentist-Orland Park) (708) 403-3393
  • Dr. Susan Lyon (ENT-Palos Heights) (708) 361-9199
  • Dr. Peter Smith Developmental Pediatrics U of C (773) 702-0660
  • Children’s at Westchester Medical and Surgical Team (312) 227-7900

Occupational, Speech and Physical Therapists and Clinics

  • www.sovereignpeds.com
    Sovereign Pediatric Therapy-Naperville (630) 585-7337
  • www.katiebugtherapy.com
    Katie Bug Therapy-Naperville (630) 904-0700 Rainbow Pediatric Therapy Place-Aurora (630) 898-2200
  • www.littlefriendsinc.org/center-for-autism
    Lenise McGregor, OT-Naperville (630) 305-4196

Recreation, Leisure, Retail

  • www.nps.gov
    National Park Services free camping tent and tools for first time campers
  • www.discovernac.org
    National Abilities Camp in Park City, Utah
  • www.fvsra.org
    Fox Valley Special Recreation Association-day camps, swim lessons, bike camp
  • www.wdsra.com
    Western Dupage Special Recreation Association-camps, lessons, social groups
  • www.thebikerack.com
    Special needs bikes and bike modifications in St. Charles
  • www.joniandfriends.org
    Parent/child camp in Michigan
  • www.readysetride.org
    in Plainfield equine therapy
  • www.equinedreams.org
    Equine therapy in Sandwich
  • www.ray-graham.org/hansoncenteractivities
    Equine therapy in Burr Ridge
  • www.gigiplayhouse.org
    Down syndrome Awareness Centers
  • www.icanshine.org
    Loose the Training Wheels bike camp
  • www.diveheart.org
    Scuba and Snorkeling for persons with disabilities
  • www.bigbeadjewelry.com
    Special needs micro-enterprise
  • www.specialsparkle.com
    Jewelry micro-enterprise run by a young adult with Down syndrome
  • www.downsdesigns.com
    Specialty clothing and jeans that fit
  • www.hammertravel.org
    Travel opportunities for special needs Support Groups and Online Sites
  • www.nickspecialneeds.com
    Blog/resources-Down syndrome with a Slice of Autism
  • www.rush.edu/autism
    A comprehensive list of resources in Chicagoland area***Great site!
  • www.parentcenterhub.org
    Extensive information and help with links your state/local agencies
  • www.behavioradvisor.com/FBA Behavior support site
  • www.facebook.com/bill.nason
    Autism Discussion Page-Bill Nason, Autism Specialist
  • https://www.ipaddunite.org/
    Illinois Parents of Adults With Developmental Disabilities
  • www.myautismteam.com
    Network site for parents
  • http://www.ndsccenter.org
    National Down Syndrome Congress
  • http://www.ndss.org
    National Down Syndrome Society
  • www.bridges4kids.org
    Great Resources for special needs families.
  • www.mayer-johnson.com
    Boardmaker software
  • www.teeach.com
    Information on TEEACH materials
  • www.bridges4kids.org
    IEP Goal helpful ideas
  • www.noahsdad.com
    Enjoyable site highlighting Down syndrome

Toileting and Personal Self-Care

  • www.especialneeds.com/diapers-pads-incontinence-swim-diapers.html
  • www.Theraquatics.com
    Swim diapers for child and adults
  • www.incont.org
    Diapers, swim diapers and related products
  • www.wetstop.com
    Bed wetting alarms

Tech Support, Evaluations, Programs and Equipment

  • www.easterseals.org
    Assistive tech evaluations and training 630-620-4433
  • www.ladseitch.pbworks.com
    Assistive tech evaluations and training
  • www.ahs.uic.edu/cl/atu/referrals/ Assistive tech evaluations (free)
  • www.mydynavox.com
    Free 30 day trial app available ($29 monthly thereafter)
  • www.silver-kite.com/touchChat
    Communication application for iPod/iPad technology
  • www.assistiveware.com/product/proloquo2go
    Augmentative and Alternative Communication
  • mike_cole@useyourwordsspeech.com
    Mike Cole, Augmenative Communication Specialist/Speech-Language Pathologist. In-home services, (630) 296-7377

Safety and Wandering Prevention

  • www.awaare.org.
    Autism Wandering Awareness Alerts Response Education has a comprehensive list of tips, materials and tools.
  • www.medicalert.org
    Medical ID bracelets
  • www.projectlifesaver.org
    Tracking system located in various cities
  • www.caretrak.com
    GPS Tracking bracelets connected to participating police departments
  • www.safetynetbylojack.com
    GPS tracking device for wrist or ankles
  • www.ilga.gov/legislation/ilcs/ilcs3.asp?…39
    Illinois Premise Alert 430ILCS132(PA-96-0788) now required in all Illinois police departments. Contact Dwayne English, Joliet PD for more information at 815-341-9025
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