In My Own Words: People with Down Syndrome is a newly launched blog “dedicated solely to the stories, reflections, and experiences of people with Down syndrome.” Katherine Anderson and her son, Sam, who has Down syndrome, created the blog together as ... Read more
New documentary film about the lives of people with Down syndrome “Perfection in Imperfect Lives“ By Emilia Walasik Hear incredible stories first hand from individuals with Down syndrome as well as from their family and friends. From Emilia: ... Read more
New Growth Charts for Children with Down Syndrome Children with Down syndrome grow differently from other children. However, advances in medical care, access to care, and improved life expectancy suggest that contemporary growth patterns may have improved... Read more
The Illinois Achieving a Better Life Experience (ABLE) Act has passed and been signed by the Governor. Following the passage of the ABLE Act at the federal level in December 2014, the Illinois ABLE Act made its way through the state legislature and became... Read more
ATTENTION DOWN SYNDROME ADVOCATES We need your help to increase the membership of the newly-formed Congressional Task Force on Down Syndrome! The Congressional Down Syndrome Caucus co-chairs Congressman Chris Van Hollen (D-MD), Congresswoman Cathy McMorri... Read more
Members of the Chicagoland D.A.D.S. group were recently interviewed for an article in the Daily Herald. See the article here. For more information about Chicagoland D.A.D.S., click here.
The ABLE National Resource Center has constructed an informal survey to gather a better understanding of the level of enthusiasm behind creating ABLE accounts and how potential beneficiaries may utilize these accounts for purposes of maintaining and incre... Read more
HB 3158, the Down Syndrome Information and Awareness Act, was passed by both houses of the Illinois General Assembly on 05/26/2015. It was sent to Governor Rauner on 06/24/2015 and is awaiting his signature to be enacted into law. For more informatio... Read more
By Patty Niemaszyk When we received news from our daughter and son-in-law that they would be expecting a baby in October we were excited beyond belief. This would be our first grandchild. My husband and I both spent our careers teaching special education.... Read more
By Colleen We all know words are powerful things. My start to being a parent was strongly affected by the words, “Your daughter has Down syndrome.” When Annie was born and diagnosed with Down syndrome, my world felt as though it had been flipped upsid... Read more
