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Rush University Medical Center Clinical Trial

Roche Pharmaceuticals is looking for potential subjects with Down Syndrome between the ages of 9 and 11 years old to participate in a clinical trial at Rush University Medical Center in Chicago. We will be testing a new medicine to see if it will help chi

  • April 21, 2016
  • Kurt
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The ABLE Act–One Year Later

The ABLE ACT A year after Congress authorized ABLE Accounts as tax-free savings accounts for individuals with special needs, the Internal Revenue Service has still not completed the regulations on how the accounts should be implemented and managed. Althou

  • December 14, 2015
  • Kurt
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New Video about NADS

Achieving Our Full Potential from Kevin Kirchman. New Video About NADS Learn about our organization Hear about our programs Listen to people with Down syndrome and their families

  • December 3, 2015
  • Kurt
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New Down Syndrome Documentary

New documentary film about the lives of people with Down syndrome “Perfection in Imperfect Lives“ By Emilia Walasik Hear incredible stories first hand from individuals with Down syndrome as well as from their family and friends. From Emilia:

  • November 9, 2015
  • Kurt
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New Down Syndrome Growth Charts

New Growth Charts for Children with Down Syndrome Children with Down syndrome grow differently from other children. However, advances in medical care, access to care, and improved life expectancy suggest that contemporary growth patterns may have improved

  • October 29, 2015
  • Kurt
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Illinois ABLE Act Passed

The Illinois Achieving a Better Life Experience (ABLE) Act has passed and been signed by the Governor. Following the passage of the ABLE Act at the federal level in December 2014, the Illinois ABLE Act made its way through the state legislature and became

  • August 13, 2015
  • Kurt
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New Congressional Task Force on Down Syndrome

ATTENTION DOWN SYNDROME ADVOCATES We need your help to increase the membership of the newly-formed Congressional Task Force on Down Syndrome! The Congressional Down Syndrome Caucus co-chairs Congressman Chris Van Hollen (D-MD), Congresswoman Cathy McMorri

  • August 12, 2015
  • Kurt
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Governor Approves Down Syndrome Information and Awareness Act

On July 27, Governor Rauner approved the Down Syndrome Information and Awareness Act (HB3158).  It is now Public Act 099-0142 and will go into effect January 1, 2016.  To view the history of the legislation, click here.  To view the text of the new law

  • July 28, 2015
  • Kurt
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Global Down Syndrome Foundation Survey for Teens and Adults

The Global Down Syndrome Foundation is developing a new medical care center for adults in Denver, CO. and is requesting input from adult self-advocates and their families through a 15 minute survey about the medical needs and lifestyles of adults with

  • July 28, 2015
  • Kurt
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