The NADS group, Down Syndrome and More, serves families whose child with Down syndrome has an additional diagnosis, such as Autism or ADHD. The More Than Down Syndrome Retreat is offered twice a year. During the Retreat, parents learn from experts and share with each other while their child with a dual diagnosis engages in fun activities and is cared for by trained respite workers. For more information about this program, please contact NADS.
Many of the resources the members of this group have gathered over the years are collected here for the benefit of other families: NADS 2017 Links and Resources for Special Needs
For more information about Down syndrome and Autism, including signs and symptoms, obtaining an evaluation for autism, and related behaviors, see the dual-diagnosis section on the website of the National Down Syndrome Society.
News & Events
UIC TAP Autism Webinar
Diagnosing Autism Spectrum Disorder in Adults
This webinar provides an overview of the complex topic of diagnosing Autism Spectrum Disorder (ASD) in an adult. We will explore the reasons why adult diagnostics are requested, differences among adults who are self-referred vs. referred by others, tools for assessment of ASD in adults, challenges in gathering developmental history and other diagnostic information, concurrent mental health assessment and dual diagnosis. The potential benefits of an ASD diagnosis for an adult, including those with dual diagnosis, as well as the experience of those who do not meet criteria for ASD (and may have a mental health disorder instead) will also be discussed.
Presenter: Joan Ingram, PhD
Register on-line at: http://go.uic.edu/autismwebinar
WORKSHOP FOR PARENTS/CAREGIVERS OF CHILDREN WITH AUTISM
Using Visual supports/Make & Take session
Date: Friday, July 28, 2017
Location: Developmental Disabilities Family Clinic, 1640 W. Roosevelt Rd, Chicago, IL
Training will be held on the 4th floor, room 448
*Funding for this seminar was so generously provided by the National Greek Orthodox Ladies Philoptochos Society, Inc.
This presentation will discuss the use of visual supports for individuals with developmental disabilities, particularly ASD. Examples of different visual supports will be shown and the purpose behind their use will be discussed. Time for making a visual support, such as a schedule, will also be included.
This informational/hands on session is intended for parents/caregivers of children with autism.
For more information and/or to reserve a spot, please contact Jessica Schultz, M.A. @ 312-996-7457 or e-mail: firstname.lastname@example.org
- A Picture's Worth-
PECS and Other Visual Communication Strategies in Autism, 2nd edition
Bondy, Andy and Lori Frost (Woodbine House, 2011). An introduction to the Picture Exchange Communication System, which is used by many people with disabilities to communicate basic needs.
- Activity Schedules for Children with Autism-
McClannahan, Lynn, 2nd edition (Woodbine House, 2010). Covers how to use activity schedules to structure tasks and teach skills.
- Advocate Illinois Masonic Special Patient Dental Care Program-
Provides routine dental care for children and adults with developmental disabilities.
- Autism Society of America-
An organization dedicated to improving the lives of all affected by autism.
- Autism Speaks-
An organization with the goal to change the future for all who struggle with autism spectrum disorders.
- Charlie's Gift Center for Autism and Related Disorders-
Charlie’s Gift offers individual and group therapy, and family support services, to address the behavioral and developmental needs of children, adolescents and young adults who are challenged by:
Autism spectrum disorders
Sensory processing and integration disorders
Anxiety, mood and attention deficit disorders
Charlie’s Gift addresses the needs of children and families facing autism and related disorders through speech, occupational, behavior therapy, counseling services, social skills development, parent advocacy and family support. All children are welcome, including those without a diagnosis. As a community wide resource serving the Chicago metro area, Charlie’s Gift strives to raise the awareness of the impact of autism and related disorders on families.
Through a family-centered team based approach, Charlie’s Gift is committed to providing a range of services to optimize the development of the child and adolescent, the personal growth of the young adult, and strengthen the family as a whole.
- Down Syndrome and Autistic Spectrum Disorder: A Look At What We Know-
By George Capone M.D. (1999)
- Down Syndrome-Autism Connection-
Non-profit organization serving individuals and families affected by both Down syndrome and autism spectrum disorders.
- DSE Down Syndrome and Autism Information-
Down Syndrome Education International summarizes educational research on children with Down syndrome and autism or an autistic spectrum disorder.
- Dual Diagnoses: the Importance of Diagnosis and Treatment-
By Bonnie Patterson M.D. (1999)
- Easter Seals Dental Program-
Provides basic dental services for Illinois residents with developmental disabilities.
- Little Friends-
Little Friends is a private, non-profit organization serving children and adults with autism and other developmental disabilities. Based in Naperville, Illinois, Little Friends operates 11 dynamic programs including three alternative schools, family support and consultation services, vocational training programs, community-based residential services and the Little Friends Center for Autism. Founded in 1965, Little Friends serves more than 800 people each year throughout DuPage, Kane, Kendall, Will, and western Cook counties.
- More Than Down Syndrome: A Parents View-
By Joan Guthrie Medlen (1999)
NADD is a not-for-profit membership association established for professionals, care providers and families to promote understanding of and services for individuals who have developmental disabilities and mental health needs.
- NDSS Down Syndrome and Autism Information-
The National Down Syndrome Society provides an overview of Down syndrome and autism.
- Nickspecialneeds Blog-
Blog by a parent who has a son with Down syndrome and autism.
- Seeing is Believing-
Video Self-Modeling for People with Autism and Other Developmental Disabilities
Buggey, Tom (Woodbine House, 2009). This book provides instructions on shooting and editing video footage to help children with developmental disabilities improve skills through visual modeling of desired behaviors.
- The Autism Discussion Page on Anxiety, Behavior, School and Parenting Strategies-
A Toolbox for Helping Children Feel Safe, Accepted and Competent.
Bill Nason (Jessica Kingsley, 2014)
- UIC Autism Clinic and TAP Training Center-
The Autism Clinic and TAP Training Center at UIC is a specialty clinic devoted to serving children, adolescents, and adults with known or suspected Autism Spectrum Disorders. Housed at the Developmental Disabilities Family Clinics of the Institute on Disability and Human Development (IDHD), the Autism Clinic & TAP Training Center's mission is to improve the lives of individuals with autism and their families through clinical service, community, academic, and professional training, and research.
- UIC Developmental Disabilities Family Clinics-
Clinics for individuals with disabilities through the University of Illinois at Chicago's Department of Disability and Human Development.
- When Down Syndrome and Autism Intersect-
Froehlke, Margaret and Robin Sattel Zaborek, editors (Woodbine House, 2013). Survey of best practices for diagnosing, treating and providing care to children with both Down syndrome and Autism.