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“Where there is charity and wisdom, there is neither fear nor ignorance.”
FRANCIS OF ASSISI

Bibliography for Down Syndrome

IN THE BEGINNING

Cunningham, Cliff, (1996) Understanding Down Syndrome: An Introduction for Parents, Brookline Books, Box 97, Newton Upper Falls, MA 02464, (617-558-8010). Well written, positive book covers many topics – feelings, effects on the family, development, and the medical and chromosomal aspects of Down syndrome.

Gold, Judy, (1997) Breastfeeding a Baby with Down Syndrome, LaLeche League International, 1400 N. Meachan Rd., Schaumburg, IL 60173-4040, (847-519-7730). Fifteen page pamphlet offering useful tips on breastfeeding.

Pueschel, Siegfried, M.D., Ph.D., J.D., M.P.H., (2001), A Parent’s Guide to Down Syndrome; Towards a Brighter Future, Brookes Publishing Comp. P.O. Box 10624, Baltimore, MD 21285-0624, (800-638-3775), 352 pages, www.brookespublishing.com. Crossing the life span, this thorough volume highlights developmental stages and shows recent advances that can improve a child’s quality of life. Written by leading experts, many of whom are parents of children with Down syndrome, this book offers readers the advice and insight they need. Also available in Spanish.

Rynders, John E. & J.M. Horrobin, (1995) Down Syndrome: Birth to Adulthood; Giving Families an Edge. Love Publishing Co., 9101 E. Kenyon Ave., Suite 2200, Denver, CO 80237, (303-221-7333). Case studies of families presented in a clear, readable fashion, followed by practical suggestions for both parents and professionals.

Schermerhorn, Will, (2003), Down Syndrome: The First 18 Months, 108 minute video and DVD, Blueberry Shoes Productions, (703-338-1776), www.blueberryshoes.com/ds18. Parents and 9 other experts cover newborns, health, therapies, and expectations. 

Stray-Gundersen, Karen, (1995) Babies with Down Syndrome: A New Parents Guide, Woodbine House, 6510 Bells Mill Rd., Bethesda, MD 20851, (800-843-7323), 340 pages, www.woodbinehouse.com. Comprehensive book on Down syndrome – what it is, medical concerns, coping, development, education, daily care and legal rights. Includes parent statements, extensive resource guide and reading list. Also available in Spanish.

HEALTH ISSUES

Medlin, Joan E. R.D. , L. D., (2002), The Down Syndrome Nutrition Handbook; A Guide to Promoting Healthy Lifestyles ,Woodbine House, 6510 Bells Mill Rd., Bethesda, MD 20817, (800-843-7323), 430 pages, www.woodbinehouse.com. This comprehensive book will help people understand the connection between Down syndrome and nutrition and help  guide people toward a healthier future.

Pueschel, Siegfried and J.K. Pueschel, editors, (1992) Biomedical Concerns in Persons with Down Syndrome, Paul H. Brookes Publishing Co., P.O. Box 10624, Baltimore, MD 21285, (800-638-3775), www.brookespublishing.com. A comprehensive resource on the biomedical issues Contains research and clinical findings in neurology, dermatology, endocrinology and cardiology, among other areas.

SKILL DEVELOPMENT

Bruni, Maryanne, (1998) Fine Motor Skills in Children with Down Syndrome, Woodbine House, 6510 Bells Mill Rd., Bethesda, MD 20817, (800-843-7323), 191 pages, www.woodbinehouse.com.  Using medical, physical and psychological characteristics of Down syndrome, the author shows how to help children prepare for and then master hand skills.

Horstmeier, Deanna, PhD., Teaching Math to People with Down Syndrome and Other Hands-on Learners; Basic Survival Skills, Woodbine House, 6510 Bells Mill Rd., Bethesda, MD 20817, (800-843-7323), 399 pages, 2004, www.woodbinehouse.com. Book One weaves learning math concepts into everyday life using common materials, the calculator, games, and hands-on activities.

Kumin, Libby, Ph.D., CCC-CLP, (2003) Early Communication Skills for Children with Down Syndrome, Woodbine House, 6510 Bells Mill Rd., Bethesda, MD 20817, (800-843-7323), 236 pages, www.woodbinehouse.com. Covers the time from birth to when a child can make 3-word sentences.  Written in a parent friendly style with lots of at home, natural activities.

Kumin, Libby, Ph.D., CCC-SLP, (2001), Classroom Language Skills for Children with Down Syndrome, Woodbine House, 6510 Bells Mill Rd., Bethesda, MD 20817, (800-843-7323), 375 pages, www.woodbinehouse.com.   Covers every aspect of a child’s language needs from kindergarten through middle school.

Oelwein, Patricia, M.Ed., (1995) Teaching Reading to Children with Down Syndrome: A Guide for Parents and Teachers, Woodbine House, 6510 Bells Mill Rd., Bethesda, MD 20817, (800-843-7323), 371 pages, www.woodbinehouse.com. Practical ideas using simple materials.

Peoples, Susan, Understanding How Children with Down Syndrome Learn; Proven and Effective Techniques for Parents and Professionals, Special Offspring Publishing, L.L.C., 5010 Lodge Pole Lane, Fort Wayne, IN 46814, (260-625-6493), specialoffspring.com, 88 pages. This book relates the findings of the 1996 Education Inclusion Study by the National Down Syndrome Society to practical classroom and home teaching techniques.

Schwartz, Sue, Ph.D., (2004), The New Language of Toys; Teaching Communication Skills to Children with Special Needs, Woodbine House, 6510 Bells Mill Rd., Bethesda;, MD, (800-843-7323), 266 pages, www.woodbinehouse.com. Targeted for children from birth through age six, this book teaches communication development through play.

Winders, Patricia, PT, (1997) Gross Motor Skills in Children with Down Syndrome, Woodbine House, 6510 Bells Mill Rd., Bethesda, MD 20817, (800-843-7323), 236 pages, www.woodbinehouse.com. This covers the gross motor skills that are appropriate for each stage of development and how the skills are broken down.

FOR / ABOUT CHILDREN

Bouwkamp, Julie, (1998), Hi, I’m Ben, Band of Angels Press, 3048 Charlwood Dr., Rochester Hills, MI 48305, (800-963-2237), www.bandofangels.com. Three-year-old Ben introduces himself. He has Down syndrome and a very full life.

Cairo, Shelly, (1985), Our Brother Has Down Syndrome: An Introduction for Children, Annick Press, Ltd., Toronto, Canada, (800-387-5085). Easy reading book written from the viewpoint of two older sisters of Jai, who has Down syndrome. It stresses his participation in family life.

Carter, Alden R., Albert Whitman & Co., 6340 Oakton St., Morton Grove, IL 60053-2723, (800-255-7675), www.albertwhitman.com, (1997) Big Brother Dustin, Dustin, who has Down syndrome, participates in the preparation for the birth of his baby sister. (1999) Dustin’s Big Day Dustin is in second grade. Follow his activities as the class waits for special visitors. (fiction)

Gernis, Meg, (2000), A, B, C for You and Me, (2001), 1, 2, 3 for You and Me, Albert Whitman and Co., 6340 Oakton, Morton Grove, IL 60053, (800-255-7675),  www.albertwhitman.com. These alphabet and counting (1-20) books feature charming photos of kids with Down syndrome illustrating the simple lessons.

Glatzer, Jenna, Taking Down Syndrome to School, Guidance Channel, 135 Dupont St., Plainview, NY 11803, (800-999-6884), 28 pages, www.guidancechannel.com. An engaging boy named Nick talks to other kids about what it is like to have Down syndrome.

Meyer, Donald, editor, (1997), Views From Our Shoes, Woodbine House, 6510 Bells Mill Rd., Bethesda, MD 20817, (800-843-7323), 114 pages, www.woodbinehouse.com.  Siblings, ages 4– 18, tell what it is like having a brother or sister with a disability.

Pitzer, Majorie, I Can, Can You?, Woodbine House, 6510 Bells Mill Rd., Bethesda, MD 20817, (800-843-7323), www.woodbinehouse.com, 16 page board book. Each photo shows a baby or toddler with Down syndrome engaged in an interesting, fun activity.

Rickert, Janet, (2000) Russ and the Firehouse, Woodbine House, 6510 Bells Mill Rd., Bethesda, MD 20817, (800-843-7323), www.woodbinehouse.com. The photo-essay features interesting events in the life of Russ, a young boy with Down syndrome. (fiction)

Stuve-Bodeen, Stephanie, (1998), We’ll Paint the Octopus Red, Woodbine House, 6510 Bells Mill Rd., Bethesda, MD 20817, (800-843-7323), 25 pages, www.woodbinehouse.com. This is a reassuring story for young children with a younger sibling with Down syndrome. (fiction).

Woloson, Eliza, (2003), My Friend Isabelle, Woodbine House, 6510 Bells Mill Rd., Bethesda, MD 20817, (800-843-7323), www.woodbinehouse.com, 28 pages. A simple but charming story for pre-school children. A teacher’s guide is also available.

FOR ADOLESCENTS / ADULTS

Kingsley, Jason and Mitchell Levitz, (1994) Count Us In: Growing Up with Down Syndrome, Harcourt Trade, Inc., 6277 Sea  Harbor Dr., Orlando, FL 32887, (800-543-1918). A unique and powerful conversational style account by two young men with Down syndrome.

Meyer, Donald, editor, (2005), Sibling Slam Book, Woodbine House, 6510 Bells Mill Rd., Bethesda, MD, 20817, (800-843-7323), www.woodbinehouse.com, 186 pages. Eighty teenagers talk about what it is like to have a brother or sister with special needs.

Pueschel, Siegfried and Maria Sustrova, M.D., Ph.D., editors, (1997), Adolescents with Down Syndrome; Toward a More Fulfilling Life, Paul H. Brookes Publishing Co., P.O. Box 10624, Baltimore, MD 21285, (800-638-3775), 416 pages, www.brookespublishing.com. This book shows readers how to encourage good nutrition and exercise, promote self-esteem, respond to challenging behaviors, plan for transitions, and help adolescents develop leisure pursuits.

Schwier, Karin Melberg and Dave Hingsburger, (2000), Sexuality; Your Sons and Daughters with Intellectual Disabilities, Paul H. Brookes Publishing Co., P.O. Box 10624, Baltimore, MD 21285, (800-638-3775), 240 pages, www.brookespublishing.com. No matter the age, everyone can learn how, when, where and with whom to interact and express themselves as male or female.

NEWSLETTERS

NADS News, National Association for Down Syndrome, P. O. Box 206, Wilmette, IL 60091, (630-325-9112), www.nads.org. Newsletter provided as part of membership in NADS. Group will provide free packet of materials upon request – also offers parent support volunteers in the Chicago metro area.

Disability Solutions, edited by Joan Medlen, R.D., L.D., 9220 SW Barbur Blvd., #119-179, Portland, OR 97219, www.disabilitysolutions.org. Free newsletter for families and others interested in Down syndrome and related disabilities.

Down Syndrome Amongst  Us: a Publication of Information, Chizuk, and Shared Experience, DSAU, Inc., 32 Rutledge Street, Brooklyn, NT 11211, e-mail: downsyndrome@earthlink.net. $15 for 3 issues of this Jewish magazine.

Down Syndrome News, National Down Syndrome Congress, 1370 Center Drive, Suite 102, Atlanta, GA 30338, (800-232-NDSC), www.ndsccenter.org, Monthly newsletter provided as part of membership in the NDSC. Group will also supply a packet of materials upon request.

FORO,  Anna Roeser, (847-362-0980), FAX 847-362-0981, Roeser1984@aol.com. This is a free newsletter for families in Spanish and English under the auspices of the Downs Development Counsel.

News & Views, Quarterly newsletter for and by teens and young adults with Down syndrome. Edited by Chris Burke; published by the National Down Syndrome Society, 666 Broadway, New York, NY 10012, (800-221-4602), www.ndss.org.

Update, Quarterly newsletter of the National Down Syndrome Society, 666 Broadway, New York, NY 10012, (800-221-4602), www.ndss.org.