Support for Families
Facing Medical Challenges
One family’s Journey
The following video was put together by the parents of a little boy with Down syndrome who has experienced a number of medical challenges from the time of his birth. The video shows some of his medical journey and of his family’s journey with him.
If you would like to contact the family to learn more about their experience or about the medical resources they have compiled, you can email Raeann at rjohncol@comcast.net.
Online resources:
Specific Medical Issues:
Heart
- www.dhg.org.uk/
- www.heartpoint.com/congheartdx.html
- www.tchin.org/index.htm
- www.groups.yahoo.com/group/Downs-Heart
Gastrointestinal
- Hirschsprung’s Disease: National Digestive Diseases Information Clearinghouse
- Reflux: MedicineNet.com
- G-tubes: www.groups.yahoo.com/group/feeding_g-tubes