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“Where there is charity and wisdom, there is neither fear nor ignorance.”
FRANCIS OF ASSISI

Support for Families
Facing Medical Challenges

One family’s Journey

The following video was put together by the parents of a little boy with Down syndrome who has experienced a number of medical challenges from the time of his birth.  The video shows some of his medical journey and of his family’s journey with him.

Click Here to view the video.

If you would like to contact the family to learn more about their experience or about the medical resources they have compiled, you can email Raeann at rjohncol@comcast.net.

Online resources:

Health Topic Searches

DS Health Message Board

Care Coordination/Assistance

Pediatric Surgery

Specific Medical Issues:

Heart

www.dhg.org.uk/

www.heartpoint.com/congheartdx.html

www.tchin.org/index.htm

www.groups.yahoo.com/group/Downs-Heart

Gastrointestinal

Hirschsprung’s Disease:

www.eapsa.org/parents/hirschsprungs.cfm

www.pullthrough.org

Reflux:

www.eapsa.org/parents/GER.cfm

www.refluxinchildren.com

G-tubes:

www.groups.yahoo.com/group/feeding_g-tubes