NADS 2012 Conference on Down Syndrome
Celebrating Down Syndrome
Saturday, September 29, 2012
NEW EXTENDED Deadline for Registration: September 25, 2012
NO REFUNDS AFTER SEPTEMBER 4, 2012.
A $20 processing fee will be deducted from all requests for refund of registration fees.
Please register early! Call 847-723-3136 with questions.
Conference SCHEDULE
8:00 – 9:00 AM Registration
9:00 – 9:15 AM Opening Remarks: Jackie Rotondi, President & Diane Urhausen, Executive Director
9:15 – 10:30 AM Celebrating Down Syndrome: Brian Skotko, M.D.,M.P.P.
10:30 – 10:45 AM Don’t Hate, Appreciate...Disabilities: Adrian Drower
10:45 – 11:00 AM Break
11:00 – 12:30 PM Workshops
12:30 – 1:30 PM Lunch - NEW! “Lunch & Learn” Discussion Groups
1:30 – 3:00 PM Workshops
3:00 – 3:15 PM Break
3:15 – 4:30 PM Workshops
Schedule for Teens & Adults
Conference for teens and adults with Down syndrome (16 and over) will run concurrently with the general conference. Space will be limited so send your registration in early. NADS members will be given first priority. Absolutely no on-site registration.
8:00-9:00 AM |
Registration (General Registration Area) |
9:00-9:30 AM |
Welcome and Introductions |
9:30-Noon |
Participants will rotate through the following 3 workshops:
|
12:15 - 1:00 PM |
Lunch |
1:00-2:00 |
Collective Soul |
2:00-3:00 |
Theater Games, Sarah Rose Graber |
| 3:15-4:15 | Dance |
| 4:15-4:30 | Wrap Up |
WORKSHOPS AT A GLANCE
11:00 AM – 12:30 PM
Communication & Technology
Level 2 Room 49
Ear, Nose, Throat and Eye Concerns in Children with Down Syndrome
Level 2 Room 56
Turkey Talk/IEP
Level 2 Room 44
The “Whys” of Behavior
Level 2 Room 47
Case Management and Transition into Adult Services
Level 2 Room 43
Planning Your Journey: Life After 22
Level 2 Room 42
The Changing Role of Fathers of Children with Down Syndrome
Level 2 Room 57
Sibling Issues for Parents
Level 2 Room 21-22-23
Legal Planning For Persons with Down Syndrome
Level 2 Room 48
1:30 PM – 3: OO PM
Transitioning From Early Intervention to Preschool and Beyond
Level 2 Room 52
Feeding and Nutrition Issues of Children from Birth to 3 Years
Level 2 Room 51
Ear, Nose, Throat and Eye Concerns in Children with Down Syndrome
Level 2 Room 56
Turkey Talk/IEP
Level 2 Room 44
The “Whys” Of Behavior
Level 2 Room 47
Learning with Technology: The Latest in Technology Applications
Level 2 Room 46
Toilet Training for Children with Down Syndrome Ages 3-8
Level 2 Room 45
Health and Mental Wellness Concerns in Teens and Adults with Down Syndrome
Level 2 Room 40
Planning Your Journey: Life After 22
Level 2 Room 42
Approaching the Age of Independence: A Parents Guide to their Child’s Employment
Level 2 Room 41
Celiac Disease in Persons with Down Syndrome
Level 2 Room 50
Sibling Issues for Parents
Level 2 Room 21-22-23
Legal Planning For Persons with Down Syndrome
Level 2 Room 48
Taking Time for Yourself
Level 2 Room 55
Music Therapy Across the Lifespan of a Person with Down Syndrome
Level 2 Room 54
3:15 – 4:30
Transitioning From Early Intervention to Preschool and Beyond
Level 2 Room 52
Feeding and Nutrition Issues of Children from Birth to 3 Years
Level 2 Room 51
Communication & Technology
Level 2 Room 49
Learning with Technology: The Latest in Technology Applications
Level 2 Room 46
Toilet Training for Children with Down Syndrome Ages 9 and Older
Level 2 Room 45
Case Management and Transition into Adult Services
Level 2 Room 43
Health and Mental Wellness Concerns in Teens and Adults with Down Syndrome
Level 2 Room 40
Approaching the Age of Independence: A Parents Guide to their Child’s Employment
Level 2 Room 41
Celiac Disease in Persons with Down Syndrome
Level 2 Room 50
The Changing Role of Fathers of Children with Down Syndrome
Level 2 Room 57
Taking Time for Yourself
Level 2 Room 55
Music Therapy Across the Lifespan of a Person with Down Syndrome
Level 2 Room 54
Workshop Details:
Birth – Three Years Old
1. Transitioning From Early Intervention to Preschool and Beyond
Jenny Somone & Marianne McGuire
Parent Liasons, Child and Family
Connections of DuPage County, PACT, Inc., Lisle, Illinois
Topics in this workshop will include the details of the transition process, what to expect from your school district, and what you can do as a parent advocate to aid the transition process. This workshop will help you to be a more comfortable and confident participant in the planning of educational services.
2. Feeding and Nutrition Issues of Children from Birth to 3 Years Old
Cindy Baranoski, MS, RD, LDN
Manager, Nutrition Department, Pediatric Nutrition Therapist
Feeding Clinic Coordinator
Easter Seals DuPage & the Fox Valley
Region, Villa Park, Illinois
Char Laursen, MS, CCC, SLP/L
Speech and Language Pathologist
Spot On Therapies, LLC, Naperville, Illinois.
This workshop will explore feeding techniques and good health through nutrition for young children with Down syndrome.
3. Communication & Technology
Ann E. Heavey, MS, CCC-SLP, C/NDT
Elmhurst, Illinois
Ms. Heavey is a speech-language pathologist who will discuss ways in which assistive technology can improve communications skills in children with Down syndrome who are 3 years old and younger. This workshop will also explore ideas and techniques to enhance speech and language development.
4. Ear, Nose, Throat and Eye Concerns in Children with Down Syndrome
Fuad M. Baroody, M.D., F.A.C.S.
Professor of Otolaryngology – Head and Neck Surgery and Pediatrics
Director of Pediatric Otolaryngology
Comer Children’s Hospital, University of Chicago, Chicago, Illinois
Michael A. Kipp, M.D., Pediatric
Opthamologist, Wheaton Eye Clinic,
Wheaton, Illinois
This workshop will focus on ear, nose, throat and eye medical issues that may affect young children with Down syndrome. Specifically, Dr. Baroody will discuss topics such as hearing screens, hearing loss, ear infections, nasal/sinus drainage and obstructive sleep apnea. Dr. Kipp will discuss topics relating to vision testing and impairment.
Four – Twelve Years Old
5. Turkey Talk
Susan Hans, Parent Mentor, Northern
Suburban Special Education District
(NSSED), Highland Park, Illinois
Presentation will entail a discussion of parent involvement in the IEP process and will help parents to shift their perspective as
participants.
6. The “Whys” of Behavior
Geana Connolly, Director of Behavior Services, Misericordia, Chicago, Illinois
This workshop presents practical interventions to address challenging behavior and explains the “whys” of such behavior.
7. Learning with Technology: The Latest In Technology Applications
Carrie De La Cruz, Assistive Technology Coordinator, Northern Suburban Special Education District
Nancy Kind, Administrator, Early Childhood Program, Northern Suburban Special Education District
This workshop will discuss ways in which assistive technology can improve the lives of individuals with Down syndrome, including exploring helpful applications on the iPad.
8. Toilet Training for Children with Down Syndrome (Ages 3-8)
Patti Boheme, MS, LCPC, Vice President, Children’s Services, Little Friends, Naperville, Illinois
Ms. Boheme will provide techniques that have been successfully used in teaching toilet training to individuals with special needs who are ages 3 through 8.
9. Toilet Training for Children with Down Syndrome (Ages 9 and older)
Patti Boheme, MS, LCPC, Vice President, Children’s Services, Little Friends, Naperville, Illinois
Ms. Boheme will provide techniques that have been successfully used in teaching toilet training to individuals with special needs who are age 9 and older.
Teens and Adults
10. Case Management and Transition Into Adult Services
Juan C. Aponte, M.S., Director of Services, Community Alternatives Unlimited, Chicago, IL
This presentation will cover Community Alternatives Unlimited’s case management services, PUNS, pre-admission screening, and justifying need for IDHS-DDD funding for home-based services and residential services.
11. Health and Mental Wellness Concerns in Teens and Adults with Down Syndrome
Brian Chicoine, M.D., Medical Director, Adult Down Syndrome Center, Park Ridge, Illinois
This workshop is a review of important health and mental wellness issues pertaining to adolescents and adults with Down syndrome.
12. Planning Your Journey: Life After 22
A Panel of Parents of Children with Down Syndrome
This unique panel will provide insightful information and a parental prospective on post-secondary education , residential living, employment, volunteering, and day programs for those with Down syndrome transitioning into life after turning 22 years old.
13. Approaching the Age of Independence: A Parents’ Guide to Their Child’s Employment
Kristen Tribe, Executive Director, Parents Alliance Employment Project, Lisle, Illinois
Ms. Tribe will present and discuss the improved quality of life for persons with Down syndrome resulting from individualized employment. This workshop will also explore ways in which parents of a child with Down syndrome can assist in their child’s job search.
All Ages
14. Celiac Disease in Persons with Down Syndrome
Erin Dominiak, M.D., Advocate Medical Group, Adult Down Syndrome Center, Park Ridge, Illinois
Eileen Walsh, Dietician, Adult Down
Syndrome Center, Park Ridge, Illinois
Merrily Smith, Patient Advocate, Adult Down Syndrome Center, Park Ridge, Illinois
This workshop will focus on diagnosing, treating and living with Celiac Disease, a gastrointestinal disease that may affect persons with Down syndrome.
15. The Changing Role of Fathers of Children with Down Syndrome
A Panel of Members of the Local Chapter of D.A.D.S.
This workshop is open to MEN ONLY.
A panel of fathers from the local D.A.D.S. (Dads Appreciating Down Syndrome) chapter will share the mission of D.A.D.S., which includes the support of fathers and families of individuals with Down syndrome. In addition to personal parenting experiences, they will provide information on membership to and meetings of the D.A.D.S. local chapter.
16. Sibling Issues for Parents
Dr. Brian Skotko, M.D., M.P.P., Children’s Hospital Boston, Boston, Massachusetts
This workshop will explore what questions, needs, and concerns are often raised by children who have a brother or sister with Down syndrome. Dr. Skotko will offer practical answers to commonly raised questions by parents and siblings.
17. Legal Planning for Persons with Down Syndrome
Larry Rivkin, Esq., Rivkin & Rivkin, LLC, Lincolnshire, Illinois
This workshop will focus on estate planning for persons with Down syndrome and their families so as to retain eligibility for government benefits. Topics will include special/supplemental needs trusts and guardianship.
18. Taking Time For Yourself
Lou Weiss, Ph.D., Licensed Clinical Psychologist, Winnetka, Illinois
This workshop will focus on the health of parents of children with Down syndrome and the importance of maintaining mental and physical health.
19. Music Therapy: Using Tunes Therapeutically Throughout a Lifetime
Melaine T. Pohlman, MT-BC, DT, Board Certified Music Therapist, Geneva, Illinois
This workshop will explore the ways in which music therapy can benefit persons with Down syndrome at any age.