By Colleen We all know words are powerful things. My start to being a parent was strongly affected by the words, “Your daughter has Down syndrome.” When Annie was born and diagnosed with Down syndrome, my world felt as though it had been flipped upsid... read more
By Nancy A letter to a younger me, pregnant with my first child… Dear Nancy, It’s been a rough weekend. I know you’re exhausted, terrified, emotionally spent. You feel like the ‘not knowing’ is going to kill you. The weight of it seems so heavy.... read more
Caregivers of Family Members with Down syndrome: Study Participants needed Quality of Life and Stress: How has your life been affected? If you are a caregiver of a family member with Down syndrome, we want to know how your quality of life and stres... read more
Design for America DFA is a national network of college students using design to create local and social impact. We are bringing together 80 students from 29 universities to design for: Enhancing the lives of those aff ected by Down Syndrome We are seeki... read more
Jennifer Friedland Moments after I delivered my first born, Sam, and after the nurses measured him, weighed him, cleaned him, and swaddled him, my husband, Dave, brought him to me. I was elated. While Dave was holding him at my bedside, I looked up at Sam... read more
By Yvonne I never imagined someone so small could teach such big life lessons. Nineteen months ago my eyes were opened to a unique world, a world I believe only a select few of us have the privilege to enjoy. You have to take time, sit back, and obser... read more
By Marianne Tyler was born January 30, 1999 at 12:05 A.M. I remember my biggest worry at the time was how the new baby would affect our 13-month-old child at home. Would they like each other? Would anyone in my family ever sleep again? It was all ... read more
